Tag Archive for ‘Health’
HHT Awareness Video
The HHT Foundation is proud to announce our first HHT Awareness initiative …. the video production More Than A Nosebleed: HHT. We all have our own HHT story and path to diagnosis but Bernstein-Rein, an advertising agency, through patient stories and the medical expertise of three HHT Center of Excellence Directors, has created the most [...]
Brain AVM Multiplicity Predicts the Diagnosis of HHT
A recent article published in Stroke, a Journal of the American Heart Association, shows that the presence of multiple brain AVMs is highly predictive of the diagnosis of HHT. Two large North American brain AVM referral centers comined their databases to compare patients with HHT and non-HHT patients.
HHT Regional Conference
Physicians and Patients are strongly encouraged to attend this one-day event on Saturday, November 5th in Dallas, TX. You won’t want to miss the latest HHT treatments and research, participation in the Brain AVM Study, receipt of 7.5 CME credits for health care professionals, networking, and much more.
NIH Brain AVM Study
The ONLY requirement for participation…. You MUST be clinically or genetically diagnosed with HHT! Come to the Regional Conference in Dallas, TX on November 5th or call the HHT Foundation to participate in this ground breaking research!
HHT Authorization Bill Introduced to Congress
HHT Diagnosis and Treatment Act of 2011 – U.S. House of Represenatives H.R. 2123 and U.S. Senate Bill S.1167. We need as many Co-Sponsors in the House and Senate as possible. It is critical for you to contact your Senators and House Representative and ask them to Co-Sponsor these bills.
Multi-Center NOSE Study
“Since my involvement with the HHT Foundation, the one area that has always been a top priority for members is better treatments of nosebleeds,” says Marianne Clancy, Executive Director. Now, after 2 years of careful design, the HHT Foundation is about to launch the largest epistaxis clinical study involving the North American Centers of Excellence.
UNC at Chapel Hill 12th HHT Center in U.S.
The HHT Foundation is excited to annouce a new partnership with the University of North Carolina at Chapel Hill. Dr. Raj Kasthuri, Director, has team of HHT physicians/specialists that have been treating HHT patients for several years and they are ready to serve you and your family. Dr. Raj Kasthuri, assistant professor of hematology and [...]
UT SOUTHWESTERN Named 11th HHT Treatment Center in U.S.
NEW North American HHT Center University of Texas – Southwestern Dallas, Tx The HHT Foundation Board of Directors has made increasing access to HHT professionals a priority. By adding new Treatment Centers of Excellence, diagnosis and treatment of HHT will be more affordable. The HHT Foundation is thrilled to announce a new partnership with the [...]
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