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	<title>HHT Foundation International &#187; Congress</title>
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	<description>Hereditary Hemorrhagic Telangiectasia - Osler-Weber-Rendu</description>
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		<title>HHT Awareness Video</title>
		<link>http://hht.org/2012/01/hht-awareness-video/</link>
		<comments>http://hht.org/2012/01/hht-awareness-video/#comments</comments>
		<pubDate>Fri, 27 Jan 2012 19:54:45 +0000</pubDate>
		<dc:creator>nicole</dc:creator>
				<category><![CDATA[HHT Alerts]]></category>
		<category><![CDATA[HHT Foundation]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[avm]]></category>
		<category><![CDATA[Brain]]></category>
		<category><![CDATA[brain abscess]]></category>
		<category><![CDATA[Brain AVM]]></category>
		<category><![CDATA[children]]></category>
		<category><![CDATA[clinic]]></category>
		<category><![CDATA[Congress]]></category>
		<category><![CDATA[Education]]></category>
		<category><![CDATA[Epistaxis]]></category>
		<category><![CDATA[genetic]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[health care]]></category>
		<category><![CDATA[Hereditary hemorrhagic telangiectasia]]></category>
		<category><![CDATA[hht]]></category>
		<category><![CDATA[HHT Awareness]]></category>
		<category><![CDATA[HHT Center of Excellence]]></category>
		<category><![CDATA[Nose Bleed]]></category>
		<category><![CDATA[nosebleeds]]></category>
		<category><![CDATA[Public Awareness]]></category>
		<category><![CDATA[Research]]></category>
		<category><![CDATA[Vascular Disease]]></category>
		<category><![CDATA[video]]></category>

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		<description><![CDATA[The HHT Foundation is proud to announce our first HHT Awareness initiative .... the video production More Than A Nosebleed: HHT. We all have our own HHT story and path to diagnosis but Bernstein-Rein, an advertising agency, through patient stories and the medical expertise of three HHT Center of Excellence Directors, has created the most [...]]]></description>
			<content:encoded><![CDATA[<p>The HHT Foundation is proud to announce our first HHT Awareness initiative .... the video production <em><strong><a href="http://video.hht.org" target="_blank">More Than A Nosebleed: HHT</a></strong></em>. We all have our own HHT story and path to diagnosis but Bernstein-Rein, an advertising agency, through patient stories and the medical expertise of three HHT Center of Excellence Directors, has created the most powerful media piece the HHT Foundation has ever created. We encourage you to <a href="http://video.hht.org" target="_blank">watch the video </a>-  it is quite compelling.</p>
<p>As members of the HHT community, you have been asking us to help get the HHT word out to the public at large.<strong> The HHT Foundation has taken action</strong> by producing this video and the associated toolkits on our website. Increasing HHT awarenss is critical to advancing HHT research and therapies, public and medical professional outreach, and physician education.</p>
<p><strong>Now, it is your turn to Take Action!</strong>  We need you to spread the word about HHT by:</p>
<p>1.  <a href="http://video.hht.org" target="_blank">Watching the video</a><br />
2.  Passing the video link, <a href="http://video.hht.org">http://video.hht.org</a>,  on to your family, friends, local media, and social media sites<br />
3.  <a href="http://www.capwiz.com/hht/home" target="_blank">Contacting your congressional members</a><br />
4.  Utilizing the toolkits and resources available on the HHT Foundation website<br />
          <a href="http://hht.org/hht-foundation/hht-fundraising/" target="_blank">Fundraising Toolkits and Ideas</a><br />
          <a href="http://hht.org/hht-foundation/public-awareness-and-media/" target="_blank">Press and Media Toolkits</a><br />
          <a href="http://www.hht.org/docs/HHT_Legislative_ToolKit.pdf" target="_blank">Legislative Toolkit</a></p>
<p>All uses of this video, <em>More Than a Nosebleed: HHT</em>, are to benefit the HHT Foundation International, Inc. and all of the families that we support around the world. To maximize the return on our investment, we need your participation  in this Awareness Campaign.</p>
<p><strong>WE WANT TO HEAR FROM YOU!</strong> Send a message to <a href="mailto:cathleen.kinnear@hht.org" target="_blank">Cathleen Kinnear</a> and let us know (1) how the video impacted you; (2) how you have used the video to educate more people about HHT; (3) what ACTION you have taken to increase HHT awareness.</p>
<p>Everyone at the HHT Foundation - Board of Directors, Executive Director, and staff - is excited about the opportunities that will present themselves through this HHT Awareness Campaign. Join us in spreading the word about HHT so<strong> we can turn hope into reality... A cure for HHT!</strong></p>

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		<item>
		<title>HHT Authorization Bill Introduced to Congress</title>
		<link>http://hht.org/hht-foundation/legislative-advocacy/</link>
		<comments>http://hht.org/hht-foundation/legislative-advocacy/#comments</comments>
		<pubDate>Sun, 19 Jun 2011 12:36:08 +0000</pubDate>
		<dc:creator>nicole</dc:creator>
				<category><![CDATA[HHT Alerts]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Advocacy]]></category>
		<category><![CDATA[co-sponsor]]></category>
		<category><![CDATA[Congress]]></category>
		<category><![CDATA[Funding]]></category>
		<category><![CDATA[H.R.2123]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[health care]]></category>
		<category><![CDATA[Hereditary hemorrhagic telangiectasia]]></category>
		<category><![CDATA[HHT Diagnosis & Treatment Act of 2011]]></category>
		<category><![CDATA[National]]></category>
		<category><![CDATA[Nose Bleed]]></category>
		<category><![CDATA[nosebleeds]]></category>
		<category><![CDATA[Public Awareness]]></category>
		<category><![CDATA[S.1167]]></category>
		<category><![CDATA[U.S. House of Representatives]]></category>
		<category><![CDATA[U.S. Senate]]></category>
		<category><![CDATA[United States]]></category>

		<guid isPermaLink="false">http://hht.org/?p=2622</guid>
		<description><![CDATA[HHT Diagnosis and Treatment Act of 2011 - U.S. House of Represenatives H.R. 2123 and U.S. Senate Bill S.1167. We need as many Co-Sponsors in the House and Senate as possible. It is critical for you to contact your Senators and House Representative and ask them to Co-Sponsor these bills.]]></description>
			<content:encoded><![CDATA[<p><a rel="attachment wp-att-2593" href="http://hht.org/hht-foundation/legislative-advocacy/capitol-2007/"></a>HHT Diagnosis and Treatment Act of 2011 - U.S. House of Represenatives H.R. 2123 and U.S. Senate Bill S.1167. We need as many Co-Sponsors in the House and Senate as possible. <strong>It is critical for you to contact your Senators and House Representative and ask them to Co-Sponsor these bills.</strong></p>

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