Hereditary Hemorrhagic Telangiectasia – Osler-Weber-Rendu

Tag Archive for ‘Brain’

HHT Awareness Video

The HHT Foundation is proud to announce our first HHT Awareness initiative …. the video production More Than A Nosebleed: HHT. We all have our own HHT story and path to diagnosis but Bernstein-Rein, an advertising agency, through patient stories and the medical expertise of three HHT Center of Excellence Directors, has created the most [...]

HHT Research Studies Expanding

The NIH-funded BRAIN AVM Study has expanded to include remote protocols for qualified patients who are not affiliated with a participating HHT Center. The NOSE STUDY is now recruiting qualified patients at 4 HHT Centers. We need you to help advance HHT research – see what is involved and how you can participate!

Brain AVM Multiplicity Predicts the Diagnosis of HHT

A recent article published in Stroke, a Journal of the American Heart Association, shows that the presence of multiple brain AVMs is highly predictive of the diagnosis of HHT. Two large North American brain AVM referral centers comined their databases to compare patients with HHT and non-HHT patients.