Tag Archive for ‘Brain AVM’
HHT Awareness Video
The HHT Foundation is proud to announce our first HHT Awareness initiative …. the video production More Than A Nosebleed: HHT. We all have our own HHT story and path to diagnosis but Bernstein-Rein, an advertising agency, through patient stories and the medical expertise of three HHT Center of Excellence Directors, has created the most [...]
HHT Research Studies Expanding
The NIH-funded BRAIN AVM Study has expanded to include remote protocols for qualified patients who are not affiliated with a participating HHT Center. The NOSE STUDY is now recruiting qualified patients at 4 HHT Centers. We need you to help advance HHT research – see what is involved and how you can participate!
Brain AVM Multiplicity Predicts the Diagnosis of HHT
A recent article published in Stroke, a Journal of the American Heart Association, shows that the presence of multiple brain AVMs is highly predictive of the diagnosis of HHT. Two large North American brain AVM referral centers comined their databases to compare patients with HHT and non-HHT patients.
HHT Regional Conference
Physicians and Patients are strongly encouraged to attend this one-day event on Saturday, November 5th in Dallas, TX. You won’t want to miss the latest HHT treatments and research, participation in the Brain AVM Study, receipt of 7.5 CME credits for health care professionals, networking, and much more.
NIH Brain AVM Study
The ONLY requirement for participation…. You MUST be clinically or genetically diagnosed with HHT! Come to the Regional Conference in Dallas, TX on November 5th or call the HHT Foundation to participate in this ground breaking research!
UNC at Chapel Hill 12th HHT Center in U.S.
The HHT Foundation is excited to annouce a new partnership with the University of North Carolina at Chapel Hill. Dr. Raj Kasthuri, Director, has team of HHT physicians/specialists that have been treating HHT patients for several years and they are ready to serve you and your family. Dr. Raj Kasthuri, assistant professor of hematology and [...]
HHT RECEIVES FUNDING FOR BRAIN AVM RESEARCH
OCTOBER 6, 2009 – The National Institutes of Health just announced a second phase of funding for the Rare Diseases Clinical Research Network (RDCRN). This research award will be funded over the next five years. Originally launched in 2003, the RDCRN addresses rare diseases through consortia and supports related to natural history, epidemiology, diagnosis, and [...]
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