Tag Archive for ‘avm’
HHT Awareness Video
The HHT Foundation is proud to announce our first HHT Awareness initiative …. the video production More Than A Nosebleed: HHT. We all have our own HHT story and path to diagnosis but Bernstein-Rein, an advertising agency, through patient stories and the medical expertise of three HHT Center of Excellence Directors, has created the most [...]
NEW HHT Research Published in NATURE
We are excited to announce that the results of HHT Foundation funded research conducted by Dr. Rosemary Akhurst (UCSF) et al. was not only published in the online journal of Nature, nature communication, on January 10, 2012 but it is the featured image of this publication. As stated in the article, “Hereditary Hemorrhagic Telangiectasia (HHT) shows considerable [...]
HHT Research Studies Expanding
The NIH-funded BRAIN AVM Study has expanded to include remote protocols for qualified patients who are not affiliated with a participating HHT Center. The NOSE STUDY is now recruiting qualified patients at 4 HHT Centers. We need you to help advance HHT research – see what is involved and how you can participate!
Brain AVM Multiplicity Predicts the Diagnosis of HHT
A recent article published in Stroke, a Journal of the American Heart Association, shows that the presence of multiple brain AVMs is highly predictive of the diagnosis of HHT. Two large North American brain AVM referral centers comined their databases to compare patients with HHT and non-HHT patients.
HHT Regional Conference
Physicians and Patients are strongly encouraged to attend this one-day event on Saturday, November 5th in Dallas, TX. You won’t want to miss the latest HHT treatments and research, participation in the Brain AVM Study, receipt of 7.5 CME credits for health care professionals, networking, and much more.
NIH Brain AVM Study
The ONLY requirement for participation…. You MUST be clinically or genetically diagnosed with HHT! Come to the Regional Conference in Dallas, TX on November 5th or call the HHT Foundation to participate in this ground breaking research!
Multi-Center NOSE Study
“Since my involvement with the HHT Foundation, the one area that has always been a top priority for members is better treatments of nosebleeds,” says Marianne Clancy, Executive Director. Now, after 2 years of careful design, the HHT Foundation is about to launch the largest epistaxis clinical study involving the North American Centers of Excellence.
UNC at Chapel Hill 12th HHT Center in U.S.
The HHT Foundation is excited to annouce a new partnership with the University of North Carolina at Chapel Hill. Dr. Raj Kasthuri, Director, has team of HHT physicians/specialists that have been treating HHT patients for several years and they are ready to serve you and your family. Dr. Raj Kasthuri, assistant professor of hematology and [...]
HHT President Charles Abbot is interviewed on KCPW
KCPW Radio program Dr. James Carlisle of University Health Care talks about genetic blood vessel disorders, including Hereditary Hemorrhagic Telangiectasia (HHT). UHC is home to one of only eight U.S. Centers of Excellence treating HHT. Utah County lawyer Charles Abbott, newly-elected president of the HHT Foundation, joins the conversation. Click the Play icon or download [...]
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