Hereditary Hemorrhagic Telangiectasia – Osler-Weber-Rendu

Physician Resources

HHT SPECIFIC PHYSICIAN RESOURCES

 

Brain AVM Definition, Symptoms, Treatment

Clinical Description via GeneReviews

Clinical Description via Genetics Home Reference

Clinical and Scientific Review of HHT

Epistaxis (Nosebleed) Severity Scoring Tool (ESS)

Read further on the matter in Dr. Hoag's abstract outlining the results of his study presented at the 8th HHT International Scientific Conference. 

HHT Clinical Guidelines – Journal of Medical Genetics

National Coalition for Health Professional Education in Genetics- NCHPEG is a Maryland-based nonprofit organization whose mission is to promote genetics education for all health professionals. NCHPEG’s membership represents a broad range of professional societies, advocacy groups, corporate entities, and government agencies dedicated to the integration of genetically based health care into mainstream practice.

PubMed – Comprises more than 19 million citations for bio-medical articles from MEDLINE and life science journals.  Citations may include links to full-text articles from PubMed Central or publisher websites.

Quick Facts about HHT

Tissue Donation – National Disease Research Interchange – This interchange is designed to serve scientists with customized biomaterials for use in studies to understand human disease. Human cells, tissues, and organs are required to investigate how human disease progresses and to develop new drugs and therapies for treatments and cures.