Tissue Donation
Printer-friendlyHHT PARTNERS WITH NDRI FOR TISSUE DONATION
NDRI is a not-for-profit organization with 27 years experience in procuring, storing, and distributing human cells, tissues, and organs to researchers and scientists. Tissues are procured through surgery, transplant, and autopsy from consented private donors, hospitals, eye banks, and organ procurement organizations across the nation. NDRI receives core funding for the National Rare Disease Biospecimen Resource from the National Institutes of Health and support from the NIH Office of Rare Diseases.
If you are interested in receiving biomaterials from a patient with Hereditary Hemorrhagic Telangiectasia, or you are in need of normal, normal adjacent tissue, or other diseased tissue, a researcher application must be completed. This application must be submitted in compliance with our NIH funding. Applications allow you to create a customized protocol for your specific research needs. Once registered in our database, your requests are matched to consented donor profiles.
To receive an application, you may contact a Rare Disease Coordinator at raredisease@ndriresource.org, or by phone at 1-800-222-6374. Access to the application is also available on NDRI’s website, www.ndriresource.org, under “Quick Links.”
NDRI offers human biomaterials in the forms of tissues, organs, cell lines, blood, and DNA. Access to banked materials may be viewed through NDRI’s Online Biospecimen Catalog. For immediate access to the OBC, visit http://www.ndriobc.org.
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