* Quick Links: North American Treatment Centers, International Treatment Centers, International Patient Support Groups

To view the latest Guidelines for HHT Centers of Excellence, please click here

An HHT Center of Excellence is defined as a medical practice that facilitates the comprehensive coordination of care necessary for treating a patient who has HHT. The standard of care must either meet or exceed the guidelines recognized by the HHT Foundation International, Inc.

The HHT Center will proactively manage the care of patients with HHT. A coordinated team of experts, knowledgeable about HHT, will collectively care for the patients seen at the Center. Ideally, a full-time nurse will work closely with the specialists to care for the patient. Usually there will be a coordinator on site to ensure proper follow up and coordination of patients care throughout the Center.

Each Center will provide medical services that are currently being provided at that facility, but will provide these services in a more organized and consistent fashion. The patient will have access to physicians who specialize in all aspects of HHT.

The HHT Foundation strongly encourages the HHT Centers to:

1. Stay abreast of the latest treatments for the various aspects of HHT.
2. Publish patient research results in appropriate medical journals and publications.
3. Make available to HHT patients information on HHT and how to become a member of the Foundation.
4. Complete an annual survey.
5. Update the HHT Foundation of any changes in staffing, phone numbers, etc. that occur at the Center.
6. Provide a copy of new journal publications that they have produced.

If this is your first visit to a Treatment Center, please review the link below to prepare for your visit.

Steps for_Families_New_to_HHT [PDF]

There are many who want desperately to get to an HHT Treatment Center, but have financial limitations. Even if their insurance covers the cost of diagnosis and treatment, the cost of getting to one of the North American HHT Centers of Excellence can prove prohibitive. There is assistance available! Click on the link below for more information.

Charitable Medical Air Transportation [PDF}

There is a foundation that can help with insurance issues. Click on the following link for more information. www.patientadvocate.org/resources.php

HHT TREATMENT CENTERS OF EXCELLENCE

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North American HHT Centers of Excellence

UNITED STATES

JOHNS HOPKINS HHT CENTER
Radiology and Radiological Science
600 North Wolfe Street / Blalock 544
Baltimore, MD 21287-4010
USA

Contact:  Courtney Myles-Ross to schedule an appointment
Tel: 410-550-LUNG (5864)

Dr. Christian Merlo, Co-Director
Dr. Sally Mitchell, Co-Director

MAYO CLINIC HHT CENTER
Division of Pulmonary & Critical Care Medicine
200 First Street S.W.
Rochester, MN 55905
USA

Contact: Dr. Karen Swanson; Dr. Michael J. Krowka
Tel: 507-266-0416
Fax: 507-266-4372
www.mayo.edu

MEDICAL COLLEGE OF GEORGIA HHT CENTER
Division of Pulmonary Medicine
1120 15th St. BBR 5513
Augusta, GA 30912-3135
USA

Contact: Janie Sims, RN for Dr. James Gossage
Tel: 706-721-0470
Fax: 706-721-2568
Email: jansims@mail.mcg.edu
http://www.mcg.edu/som/medicine/Pulmonary/pvd/hht/

OREGON HEALTH & SCIENCE UNIVERSITY
HHT CENTER
OHSU L-605
3181 S.W. Sam Jackson Park Rd.
Portland, OR 97239-3011
USA

Contact: Dr. Mark Chesnutt
Tel: 888-222-6478 ext 7660 or 503-494-7660
Fax: 503-494-7664
http://www.ohsu.edu/hht 

UNIVERSITY OF CALIFORNIA at SAN DIEGO HHT CENTER
UCSD Medical Center
200 West Arbor Dr. 8756
San Diego, CA 92103
USA

Contact: Julie Fisher, HHT Clinic Coordinator for Dr. Thomas Kinney
Tel: 619-543-7965
www.ucsdir.org
http://health.ucsd.edu/specialties/radiology/ir/HHT

UNIVERSITY OF PENNSYLVANIA
Division of Medical Genetic
3400 Spruce Street, 1115 Penn Tower
Philadelphia, PA 19104-4283
USA

Contact: Dr. Reed Pyeritz; Dr. Scott Trerotola
Clinic Coordinator: Rachel Kline
Tel: 215-662-4740
Fax: 215-614-0298
www.uphs.upenn.edu/penngen

UNIVERSITY OF UTAH MEDICAL CENTER
50 North Medical Drive
HHT Clinic/1A71 SOM
Salt Lake City, UT 84132 

Contact:

Jamie McDonald, MS, LGC, Co-Director
Kevin Whitehead M.D., Co-Director

Tel: 801-581-8188 or tollfree 866-292- 4HHT
Fax: 801-581-2414

http://healthcare.utah.edu/hht/

WASHINGTON UNIVERSITY SCHOOL OF MEDICINE
660 South Euclid Avenue
St. Louis, MO 63110-1093
USA
http://hht.im.wustl.edu

Contact: Dr. Murali Chakinala  (Adults)
Tel: 877-888-5864 or 314-454-8917

Contact: Dr. Andy White  (Pediatrics)
Tel: 1-888-503-2237

Contact: Dr. Jay Piccirillo (ENT)
Tel: 314-362-8641

YALE UNIVERSITY SCHOOL OF MEDICINE
Department of Diagnostic Radiology
P.O. Box 208042
333 Cedar St., Room 5039 LMP
New Haven, CT 06520
USA

Contact: Kate Henderson, MS  for Dr. Robert White
Tel: 203-737-5395
Fax: 203-737-5394
http://www.hhtavm.org

CANADA

TORONTO HHT NETWORK
St. Michael's Hospital
6 Bond St., Room 6049
Toronto, ON M5B 1W8
CANADA
www.hhttoronto.com

Adult HHT & Pulmonary AVM Center
Contact: Rose Pantalone for Dr. Marie Faughnan, Director
Tel: 416-864-6060 ext. 2407

Pediatric HHT Clinic
Director: Dr. Felix Ratjen
Hospital for Sick Children
Tel: 416-813-5837 (contact: Susan Carpenter)

HHT Genetics Team
The Hospital for Sick Children
Division of Clinical & Metabollic Genetics
555 University Ave.
Toronto, ON M5G1X8
Canada

Contact: Ms. Regan Klatt, MS,CCGC,CGC
Vice-Director
Tel: 416-813-6389
Fax: 416-813-5345
 

Brain AVM Clinic
University Health Network
Dr. Karel terBrugge
Interventional Neuroradiologist
Tel: 416-603-5266
http://www.brainavm.com

 
EDMONTON HHT CENTRE
2E4.26 Walter Mackenzie Centre - University of Alberta
8440 112 Street
Edmonton, AB T6G 2B7
CANADA

Contact: Laura Miller for Dr. Vethanayagam
Tel: 780-407-7554

MONTREAL HHT CENTRE
CHUM, Hotel Dieu
840 rue St. Urbain
Montreal, QC H2W 1T8
CANADA

Contact: Therese Carle for Dr. Marie Faughnan
Tel: 514-890-8000 local 15672
Fax: 514-412-7123

International HHT Centers of Excellence

1. HHT LONDON
Hammersmith Hospital
DuCane Road
London, ENGLAND W12 ONN

Contact: Georgina Rudd for Dr. Claire Shovlin
Tel: 44-208-383-3058

Contact: Dr. James Jackson (Secretary Pamela Brayshay)
Tel: 44-208-383-3485

Patient Support Group (TSHG): www.telangiectasia.co.uk
Contact: Diana Lawson
39 Sunny Croft Downley
High Wycombe, Bucks ENGLAND HP13 5UQ

2. HHT HULL - NORTHEAST ENGLAND
Hull Royal Infirmary
Anlaby Rd
Hull, ENGLAND HU3 2JZ

Contact: Mrs. Hilary Finnis and Dr. Graham Robinson
Tel: 44(0) 1482-674608
www.hey.nhs.uk/hht
 
Patient Support Group (TSHG): www.telangiectasia.co.uk

3. NATIONAL HHT CENTRE IRELAND
Mercy University Hospital
Grenville Place
Cork, IRELAND

Contact: Margaret Murphy & Dr. Adrian Brady
Tel: 353-21-2305040
 

Patient Support Group:
Grace Nolan Foundation at www.Gracenolan.com

4. HHT THE NETHERLANDS
St. Antonius Ziekenhuis
Koekoekslaan 1
3435 CM Nieuwegein, THE NETHERLANDS

Contact: Dr. Hans Jurgen Mager
Appointments: Mrs. Elly Vermorken
31-30-609-9111
www.renduoslerweber.nl

5. HHT GERMANY – COLOGNE
Kliniken der Stadt Koeln / Hospitals of the City of Cologne
Krankenhaus Holweide / Holweide Hospital
HNO – Abteilung / Department of Otorhinolaryngology
Neufelder Str. 32
D-51067 Koeln GERMANY

Contact: Dr. Urban Geisthoff
Tel: 49-221-8907-12727
Fax: 49-221-8907-2730

Patient Support Group: http://www.morbus-osler.de

6. HHT GERMANY - HOMBURG
Univ. HNO-Klinik
Kirrberger Strasse
D-66421 Homburg
Saar, 49 GERMANY

Contact: Dr. Urban W. Geisthoff
Tel: 49-221-8907-12727
Fax: 49-221-8907-2730

Patient Support Group: http://www.morbus-osler.de

7. HHT GERMANY - MARBURG
Philipps-University Marburg
Department of Otorhinolaryngology
Deutschhausstrasse 3
D-35037 Marburg
GERMANY

Contact: Suzanne Zapf for Prof. Dr. Werner
Tel: 49-6421-2866808
Fax: 49-6421-2866367

Patient Support Group: http://www.morbus-osler.de

8. HHT GERMANY-LIPPSPRINGE
Department of Otolaryngology
Head and Neck Surgery
Karl-Hansen Medical Center
Antoniusstr. 19
D-33175 Bad Lippspringe GERMANY

Contact: Dr. Benedikt J. Folz
Tel: 49-5252-954302
Fax: 49-5252-954350

Patient Support Group: http://www.morbus-osler.de

9. HHT DENMARK
Odense University Hospital
Dept. of Otorhinolaryngology
Sdr Boulevard 29
5000 Odense C
DENMARK

Contact: Dr. Anette Kjeldsen
Tel: 045-6320-2120 or 045-6320-2127

Patient Support Group: www.osler.dk

10. HHT NORTHERN ITALY
HHT Clinical Team
U.O di Gastroenterologia ed Endoscopia Digestiva
Ospedale Maggiori
Largo Dossena 2
Crema, 26103 ITALY

Contact: Dr. Elisabetta Buscarini
Tel: 0039-0373-280422/280726 (secretary)
Fax: 0039-0373-280654

HHT Genetics Team
Universita di Pavia
Genetica Medica
Via Forlanini 14
Pavia, 27100 ITALY

Contact: Professor Cesare Danesino
Tel: 0039-0382-507737
Fax: 0039-0382-525030


Patient Support Group:
Fondazione Italiana HHT http://www.hht.it

11. HHT SOUTHERN ITALY
University of Bari
Dipartimiento di Medicina Interna e Medicina Pubblica
Universita Policlinico
Piazza G. Cesare, Bari 70124 ITALY

Contact: Professor Carlo Sabba, M.D.
Tel/Fax: 39-080-5478708
www.hht-italia.com

Patient Support Group: www.hhtonlus.com

12. HHT CENTER SPAIN
Hospital Sierrallana (Servicio Cantabro de Salud)
Servicio de Medicina Interna
Barrio Ganzo s/n
39300 Torrelavega (Cantabria) SPAIN

Contact: Dr. Roberto Zarrabeitia
Contact: Dr. Perez del Molino
Tel: 34-942-847400 (8053)
Fax: 34-942-847501

Patient Support Group: www.asociacionhht.org or renduosler@asociacion-hht.org

13. HHT CENTER SOUTHERN FRANCE
Service de Genetique
Hotel Dieu
Quai Jules Courmont
69288 Lyon Cedex 02 FRANCE

Contact: Professor Henri Plauchu
Tel: 4-72-413295
Fax: 4-72-413146

Patient Support Group: www.amro-france.org

14. HHT CENTER PARIS, FRANCE
Consultation Pluridisciplinaire Maladie de Rendu-Osler
Hopital Ambrose Pare
9, Avenue Charles de Gaulle
92104 Boulogne Billancourt Cedex FRANCE

Contact: Benedicte Chesneau
Tel: 33-014094432

Patient Support Group: www.amro-france.org

15. HHT CENTER JAPAN
Akita University School of Health Services
Department of Physical Therapy
1-1-1 Hondo, Akita, 010-8543 JAPAN

Contact: Dr. Takanobu Shioiya
Tel: 81-18-834-111 Ext. 6531
Fax: 81-18-884-6500

16. HHT CENTER NORWAY
Rikshospitalet University Hospital
Oslo, NORWAY

Contact: Dr. Ketil Heimdal
Tel: 47-2307-5593
Fax: 47-2307-5590

17. HHT CENTER CHINA
Department of Radiology
The Institute of Vascular Interventional Radiology
The First Affiliated Hospital of China Medical University
No. 155, Nanjing Bei Street
Shenyang, CHINA 110001

Contact: Dr. Hongshan Zhong & Dr. Ke Xu
Tel: 86-24-832-82447
Fax: 86-24-83282629

18. HHT CENTER ISRAEL
Schneider Children's Medical Center of Israel
Rabin Medical Center, Tel Aviv University
14 Kaplan St. , Petach Tikwa
HHT clinic, Respiratory Division
Tel Aviv, ISRAEL

Contact: Dr. Meir Mei-Zahav, Director
Tel: 972-3-9253654
Fax: 972-3-9253308

Patient Support Group: Meira Heiman, President
Tel: 972-050-6-417187
Email: hht_issg@yahoo.com or heimann@netvision.net.il

International Patient Support Groups

DENMARK
http://www.osler.dk

Coordinator:  Dorthe Therkild Petersen
Webmaster: Erik Mohr

ENGLAND
Coordinator: Diana Lawson
39 Sunny Croft Downley
High Wycombe Buck, ENGLAND HP13 5UQ

Web Monitor: Matt Flectcher
info@telangiectasia.co.uk
Telangiectasia Self-Help Group at www.telangiectasia.co.uk

FRANCE
http://www.amro-france.org
Dominique Cortadellas, Patient Education Liaison Email: amrofrance@aliceadsl.fr

GERMANY
Morbus-Osler-Selbsthilfe at http://www.morbus-osler.de

IRELAND
Grace Nolan Foundation at www.Gracenolan.com

ISRAEL
The HHT Patient Association in Memory of B. Getz
President: Meira Heiman
Tel: 972-050-6-417 187
Email: hht-issg@yahoo.com, heimann@netvision.net.il

ITALY
Fondazione Italiana HHT, email: informazioni@hht.it.
http://www.hht.it

HHT Onlus-Associazione Italiana at www.hhtonlus.com

SPAIN & PORTUGAL Patient Support Group
www.asociacionhht.org or renduosler@asociacion-hht.org

SWEDEN
http://www.osler.se