Who We Are
HHT Foundation International, Inc.
HHT Foundation, International
P.O. Box 329
Monkton, Maryland 21111
Phone: (410) 357-9932
Fax: (410) 357-0655
* Quick Links: Office, Board, GRMAB
HHT Foundation Staff
Marianne Clancy
Executive Director
Mariannes.clancy@hht.org
Nicole Schaefer
Director, Education and Research Programs
Nicole.schaefer@hht.org
Sharon Williams
Manager, Legislative Advocacy
Sharon.williams@hht.org
Mary Leigh Krock
Manager, Member Services and Corporate Development
Maryleigh.krock@hht.org
Cathleen Kinnear
Executive Office Administrator
Cathleen.Kinnear@hht.org
Trish Linke
Patient Education Liaison
hhtinfo@hht.org
James Gossage, M.D.
Medical Director
Board of Directors
FY 2011-2012
Dennis Routledge
President
Garden City, NY
Terry Thompson, Jr.
Vice-President
Summit, NJ
John (Jack) McMahon
Secretary
Downingtown, PA
Charles Atkins
Treasurer
Bluffton, SC
Robert Berkman
Member
Bluffton, SC
Angela Carlisle-Brown
Member
Concord, CA
Roy Forey
Member
Washington, DC
Ed Jurevic
Member
Chesterfield, MO
Michael Lewis
Member
Venice, CA
Jody Nissan
Member
Canton, MI
Michael Nolan
Member
Cork, Ireland
Scott Olitsky, M.D.
Member
Leawood, KS
Beth Plahn
Member
Garretson, SD
John Spencer, Jr.
Member
Spring Hill, FL
Global Research and Medical Advisory Board
FY 2010-2011
Carmelo Bernabeu, Ph.D.
Chair
Centro de Investigaciones Biologicas, CSIC
SPAIN
Jamie McDonald, M.S., C.G.C.
Vice-Chair
University of Utah
Salt Lake City, Utah
Marie E. Faughnan, M.D., MSc
Chair Emeritus
(Pulmonary)
St. Michaels Hospital
CANADA
Peter B. Terry, M.D.
Past Vice-Chair
(Pulmonary)
Div. of Pulmonary & Critical Care Medicine
The Johns Hopkins Hospital
Baltimore, MD
Robert I. White, Jr., M.D.
Chair Emeritus
(Interventional Radiology)
Department of Diagnostic Radiology
Yale University School of Medicine
New Haven, CT
Helen Arthur, Ph.D.
(Scientist)
Institute of Human Genetics
Newcastle University
UK
Pinar Bayrak-Toydemir, Ph.D.
(Genetics)
ARUP Laboratories
Salt Lake City, Utah
Joyce Bischoff, Ph.D.
(Scientist)
Department of Surgery
Children's Hospital Boston
Harvard Medical School
Boston, MA
Luisa Maria Botella, Ph.D.
(Scientist)
Centro Investigaciones Biologicas, CSIC
SPAIN
Murray Brilliant, Ph.D.
(Medical Genetics)
Elisabetta Buscarini, M.D.
(Gastroenterology / Hepatology)
U.O. di Gastroenterologia ed Endoscopia Digestiva
ITALY
Murali Chakinala, M.D., FCCP
(Pulmonary)
Washington University School of Medicine
St. Louis, MO
Mark S. Chesnutt, M.D.
(Pulmonary)
Dotter Interventional Institute
Portland, OR
Gary Duckwiler, M.D.
(Interventional Neuroradiology)
David Geffen School of Medicine at UCLA
Los Angeles, CA
Sophie Dupuis-Girod, M.D., Ph.D.
(Scientist)
Service de Genetique
Hopital Louis Pradel
FRANCE
Guadalupe Garcia-Tsao, M.D..
(Hepatology)
Department of Internal Medicine - Digestive Disorders
Yale University School of Medicine
New Haven, CT
Urban W. Geisthoff, M.D.
(Otolaryngology)
Kliniken der Stadt Koeln
HNO-Abteilung
GERMANY
Daniel Goodenberger, M.D.
(Pulmonary)
University of Texas - Southwestern
Dallas, TX
Alan Guttmacher, M.D.
(Medical Genetics)
Director, Eunice Kennedy Shriver National Institute of Child Health & Human Development
Bethesda, MD
Christopher Hughes, Ph.D.
(Scientist)
Department of Molecular Biology and Biochemistry
University of Californie - Irvine
Irvine, CA
Luisa Iruela-Arispe, M.D.
(Scientist)
Department of Molecular, Cell, and Dev. Biology
Molecular Biology Institute
University of California
Los Angeles, CA
Anette Kjeldsen, M.D.
(Otolaryngology)
Odense University Hospital
DENMARK
Michelle Letarte, Ph.D.
(Scientist)
Molecular Structure and Function Program
The Hospital for Sick Children
Toronto, ON
CANADA
Meir Mei-Zahar, M.D.
(Scientist)
Children's Medical Center of Israel
ISRAEL
Jose Miguel Lopez-Novoa, Ph.D.
(Scientist)
Dept. de Fisiologia y Farmacologia
Universidad de Salamanca
SPAIN
Hans-Jurgen Mager, M.D., Ph.D.
(Pulmonary)
THE NETHERLANDS
Douglas Marchuk, Ph.D.
(Scientist)
Dept. of Molecular Genetics
Duke University Medical Center
Durham, NC
Bradley Marple, M.D.
(Otolaryngology)
UT Southwestern Otolaryngology Center
Dallas, TX
Franklin J. Miller, M.D.
(Interventional Radiology)
UCSD Medical Center
Department of Radiology
San Diego, CA
Christine Mummery, Ph.D.
(Scientist)
Department of Anatomy & Embryology
Leiden University Medical Center
THE NETHERLANDS
Suk Paul Oh, Ph.D.
(Scientist)
Department of Physiology and Functional Genomics
University of Florida
Cancer & Genetic Research Complex
Gainesville, FL
Henri Plauchu, M.D., Ph.D.
(Medical Genetics)
Service De Genetique
Hotel Dieu
FRANCE
Reed E. Pyeritz, M.D., Ph.D.
(Medical Genetics)
University of Pennsylvania School of Medicine
Philadelphia, PA
Douglas Ross, M.D.
(Otolaryngology)
St. Vincent's Hospital
Bridgeport, CT
Carlo Sabba, M.D.
(Internal Medicine)
University of Bari
Policlinico
ITALY
Claire Shovlin, Ph.D., M.A., F.R.C.P.
(Pulmonary/Scientist)
Respiratory Medicine
NHLI Imperial College
Hammersmith Campus
U.K
Dennis Sprecher, M.D.
(Cardiology / Board Liaison)
Director, Discovery Medicine
GlaxoSmithKline
King of Prussia, PA
Karel G. terBrugge, M.D., F.R.C.P. (C)
(Interventional Neuroradiology)
Head, Division of Neuroradiology
Professor of Radiology & Surgery
University of Toronto
Toronto Western Hospital
Toronto, Ontario
CANADA
Calvin Vary, Ph.D.
(Scientist)
Center for Molecular Medicine
Maine Medical Center Research Institute
Pine Point, ME
Lawrence Young, M.D.
(Cardiology)
Section of Cardiovascular Medicine
Yale University School of Medicine
New Haven, CT

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