Regional Networking Alliance
Printer-friendlyWHAT IS A REGIONAL NETWORKING ALLIANCE?
Living with a rare disorder can be isolating and frightening. Whether you are newly diagnosed with HHT or have been living with the disorder for years, you don't have to face this illness alone.
A Regional Networking Alliance is a group of individuals united through a common purpose. It is an informal group of empowered volunteers that work closely with the HHT Foundation to facilitate local connections for individuals and families affected by HHT. A Regional Networking Alliance's mission may vary according to the needs of the local community. The Regional Networking Alliance is meant to foster stronger links between the HHT Foundation, local communities, and individuals across the country.
The HHT Foundation has an ever-growing network of support groups called Regional Networking Alliances (RNA) operating across the United States.
Are you a member of the HHT Foundation and wish to participate in your local RNA?
Download and fill out this release form to return to the HHT Foundation's office to learn about RNA activites in your area. Click Here for RNA Release Form
Are you interested in becoming active in your local RNA but you are not a HHT Foundation Member?
Click here to become a member today!
DIRECTORY OF REGIONAL NETWORKING ALLIANCES
California - North and Central and Nevada
Regional Coordinator: Angela Carlisle-Brown, Concord, CA
Email Address: alfaangle@aol.com
California - Southern (Orange, Riverside & San Diego Counties)
Regional Coordinator: Debra Drysdale, Newport Beach, CA
Email Address: debradrysdale@cox.net
California - Southern (Los Angeles, Ventura, & Santa Barbara Counties)
Regional Coordinator: Becky Rubenstein, Ventura, CA
Email Address: beccarubenstein@gmail.com
Kansas
Regional Coordinator: Scott Olitsky, Leawood, KS
Email Address: scottolitsky@aol.com
Louisiana RNA
Regional Coordinator: Doc Hanks, Ragley, Louisiana
Email Address: docwg56@yahoo.com
Maine - ME, NH
Regional Coordinator: Darcy Pomerleau, Naples, ME
Email Address: Witsendinc2@fairpoint.net
Co-Regional Coordinator: Stacey Sawyer, Naples, ME
Email Address: kaykuhbritt@yahoo.com
Maryland / DC / Delaware
Regional Coordinator: Sara Palmer, Baltimore, MD
Email Address: spalmer@jhmi.edu
Co-Regional Coordinator: Cindy Weyant, Bel Air, MD
Email Address: cweyant@comcast.net
Michigan
Regional Coordinator: Carol Gaertner, Saginaw, Michigan
Email Address: carolgaertner610@msn.com
Missouri
Regional Coordinator: Fran Weber,
Email Address: fran.weber@fhsdschools.org
New Jersey and New York
Co-Regional Coordinators: Joel & Abbe Rosner, Teaneck, NJ
Email Address: joelrosner@yahoo.com; abberosner@yahoo.com
North Carolina
Regional Coordinator: Nona Saling, Chapel Hill, NC
Email Address: nona.saling@nc.rr.com
Ohio
Regional Coordinator: Denise Sherman, North Olmsted, OH
Email Address: dsherman09@gmail.com
Philadelphia, PA Area
Co-Regional Coordinators: Allan & Gwen Olitsky, Landsdale, PA
Email Address: ajolitsky@aol.com; gwenOMS@aol.com
Rhode Island/Connecticut/Massachusetts
Regional Coordinator: Bob Resinger, West Warwick, RI
Email Address: hhtrcne@cox.net
Canada (Western) Support Group
Regional Coordinator: Delaine Elle, Edmonton, Alberta
Email Address: celle@telus.net
WHY JOIN A REGIONAL NETWORKING ALLIANCE
There are no limits to what can be accomplished when you enlist the power and potential of individuals working together for a common purpose. A Regional Networking Alliance can provide a forum for individuals to share their concerns and experiences. In a Regional Networking Alliance, you can discover the tools you need to utilize on a day to day basis, finding answers to your questions, and obtaining access to resources and services. Contact Christine Auro at 800-448-6389 or christine.auro@hht.org. Our goal is to have one RNA for each state; therefore we have adopted a policy to name each RNA group based on the state in which the Regional Coordinator resides.
Regional Networking Alliances are critical to the mission of the HHT Foundation. We recognize and value the Regional Networking Alliances local expertise, their ability to reach out to others affected by this disorder in their area, their understanding of this disorder, and their ability to make a real difference. The HHT Foundation will work hand in hand with the Alliances to provide support and resources when and where needed.
