Regional Networking Alliance

WHAT IS A REGIONAL NETWORKING ALLIANCE?

Living with a rare disorder can be isolating and frightening.  Whether you are newly diagnosed with HHT or have been living with the disorder for years, you don't have to face this illness alone.

A Regional Networking Alliance is a group of individuals united through a common purpose. It is an informal group of empowered volunteers that work closely with the HHT Foundation to facilitate local connections for individuals and families affected by HHT. A Regional Networking Alliance's mission may vary according to the needs of the local community. The Regional Networking Alliance is meant to foster stronger links between the HHT Foundation, local communities, and individuals across the country.

The HHT Foundation has an ever-growing network of support groups called Regional Networking Alliances (RNA) operating across the United States.

Are you a member of the HHT Foundation and wish to participate in your local RNA?

A benefit of your HHT membership is your opportunity to participate in a regional networking alliance. Contact your local RNA Coordinator for activities in your area or start an RNA in your area by contacting Gwen Olitsky, National RNA Coordinator at rnaus@hht.org.

Are you interested in becoming active in your local RNA but you are not a HHT Foundation Member?

Click here to BECOME A MEMBER today!

DIRECTORY OF REGIONAL NETWORKING ALLIANCES

Click Here to print RNA Directory

Arizona
Co-Regional Coordinator: Pat Jedlicka, Scottsdale, AZ
Email Address: Gjedlicka@aol.com

Co-Regional Coordinator: Carol Ann Bougault, Mesa, AZ
Email Address: cabscrapqueen@cox.net

California - North, Central and Nevada
Regional Coordinator:  Angela Carlisle-Brown, Concord, CA
Email Address: alfaangle@aol.com

California - Southern (Orange, Riverside & San Diego Counties)
Regional Coordinator:  Debra Drysdale, Newport Beach, CA
Email Address: debradrysdale@cox.net

California - Southern (Los Angeles, Ventura, & Santa Barbara Counties)
Regional Coordinator: Becky Rubenstein, Ventura, CA
Email Address: beccarubenstein@hotmail.com

Kansas
Co-Regional Coordinator: Scott Olitsky, Leawood, KS
Email Address: scottolitsky@gmail.com

Co-Regional Coordinator: Janet Sayers (Susi), Gardner, KS
Email Address: susiS0615@yahoo.com

Louisiana RNA
Regional Coordinator:  Doc Hanks, Ragley, Louisiana
Email Address:  docwg56@yahoo.com

Maine - ME, NH
Co-Regional Coordinator: Darcy Pomerleau, Naples, ME
Email Address: Witsendinc2@fairpoint.net

Maryland / DC / Delaware
Regional Coordinator: Sara Palmer, PhD, Baltimore, MD
Email Address: spalmer@jhmi.edu

Michigan
Regional Coordinator: Diana Purdy, Clyde, MI
Email Address: michiganhht@aol.com

Minnesota
Regional Coordinator, Susan Reid, Golden Valley, MN
Email Address: hht.in.minnesota@gmail.com

Missouri
Regional Coordinator: Fran Weber, Ballwin, MS
Email Address: ftweber@charter.net

New England  (RI, CT, MA)
Regional Coordinator: Bob Resinger, West Warwick, RI
Email Address: hhtcne@cox.net

New Jersey
Co-Regional Coordinators: Joel & Abbe Rosner, Teaneck, NJ
Email Address: joelrosner@yahoo.com & abberosner@yahoo.com

North Carolina
Regional Coordinator: Nona Saling, Ed.D, SPHR, Chapel Hill, NC
Email Address: nona.saling@nc.rr.com

Ohio  (Cleveland Area)
Regional Coordinator: Denise Sherman, North Olmsted, OH
Email Address: dsherman09@gmail.com

Ohio  (Columbus Area)
Regional Coordinator: Marijo McCune, Powell, OH
Email Address: marijomccune@yahoo.com

Pennsylvania  (Philadelphia Area)
Co-Regional Coordinators: Allan and Gwen Olitsky, Lansdale, PA
Email Address: PhillyHHT@aol.com

Tennessee
Regional Coordinator: Dawn Voytko, Pleasant Shade, TN
Email Address: dvoytko316@yahoo.com

Texas  (Dallas Area)
Regional Coordinator: Russell Haile, Weatherford, TX
Email Address: rhaile_hht@sbcglobal.net

Washington
Regional Coordinator: Leigh Lingbloom, Bellingham, WA
Email: lmlingbloom@msn.com
 

Western Canada
Regional Coordinator: Delaine Elle, Edmonton, Alberta
Email: celle@telus.net

WHY JOIN A REGIONAL NETWORKING ALLIANCE

There are no limits to what can be accomplished when you enlist the power and potential of individuals working together for a common purpose. A Regional Networking Alliance can provide a forum for individuals to share their concerns and experiences. In a Regional Networking Alliance, you can discover the tools you need to utilize on a day to day basis, finding answers to your questions, and obtaining access to resources and services.  Contact Sharon Williams at 800-448-6389 or sharon.williams@hht.org. Our goal is to have one RNA for each state; therefore we have adopted a policy to name each RNA group based on the state in which the Regional Coordinator resides.

Regional Networking Alliances are critical to the mission of the HHT Foundation. We recognize and value the Regional Networking Alliances local expertise, their ability to reach out to others affected by this disorder in their area, their understanding of this disorder, and their ability to make a real difference. The HHT Foundation will work hand in hand with the Alliances to provide support and resources when and where needed.