HHT Foundation

Celebrating 20 Years of Serving the HHT Community

The HHT Foundation is celebrating 20 years of fulfilling our mission to find a cure for HHT while saving lives and improving the well-being of individuals and families affected by HHT. Click HERE to read where we've come from and what we've accomplished in the last 20 years.

Investing in HHT

An Investment in Your Family's Future

Marianne Clancy, Executive Director of the HHT Foundation, recently sat down with an HHT donor family to update them on the progress of a research project they funded. They went on to say “Our investment in HHT has the promise of being one of the best performers in our portfolio.  What makes this so interesting is, at first we thought it was charity but seeing the results of the project we realized it was really an investment in our family’s future.” They said their financial advisor was also in favor of them making another investment in HHT.  After hearing the rest of their story, we asked if we could share it with our members.  They agreed only if we could continue to maintain their anonymity.  Click HERE to read their story.

HHT Foundation and HHT Treatment Centers

Every year, the HHT Foundation receives phone calls, emails, and letters asking about the differences between the HHT Foundation and the HHT Centers of Excellence. On the surface, we may look and act as one entity but the reality is that we are completely separate institutions. Click HERE to read "A tale of separate institutions working toward a common goal".

This website is operated by the Hereditary Hemorrhagic Telangiectasia Foundation International, Incorporated. HHT Foundation International is a worldwide, non-profit organization whose purpose is to support patients and families and educate medical professionals. This site is dedicated to the individuals and medical professionals who encounter the daily challenges of managing Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome. HHT is a genetic disorder, which affects blood vessels. This disorder is worldwide affecting males and females of all races and ethnic groups. Up to 1/3 of HHT patients can have multiple organ involvement, which can be disabling and/or life threatening. HHT can be treated successfully if correctly diagnosed.

We hope that the information provided on this website is informative and helpful. We encourage visitors to become a member of the Foundation in order to stay fully aware of advances made in research, treatment and education. If you are a member of the HHT Foundation and request a password and still are unable to successfully enter the new website, assume that the Foundation does not have your e-mail address. Please either e-mail your correct address to us or call us at the 800 number below. We will then enter your information into our database and you can then log in within a few hours and request a password which then will enable you to enter the site.

If you have any comments or questions about the site, please email us at hhtinfo@hht.org.

" To wrest from nature the secrets which have perplexed philosophers in all ages, to track to their sources the causes of disease, to correlate the vast stores of knowledge, that they may be quickly available for the prevention and cure of disease-these are our ambitions,"

-- Sir William Osler