2012 Events

The HHT Foundation needs your help to reach our grassroots fundraising goal of $70,000 this year!

Bay to Breakers
San Francisco, CA
May 20, 2012

Greg Brown has been severely affected by HHT. He has had 2 brain surgeries, 3 lung surgeries, an abdominal surgery, liver failure, daily nose bleeds and IV iron (every other week for 8 years) because of HHT. His children have recurring nose bleeds and have lung and brain issues related to HHT. His grandmother and 12 year old cousin died from the disease. His sister had a stroke at 20 years old.

Greg's goal is to raise $5,000. Click Here to help make Greg's dream a reality. “The HHT Foundation is dedicated to finding a cure for HHT. Please help me by donating to this very personal and important cause. My wife and I visualize a world without HHT, a world where our children are healthy and happy."

3rd Annual Stoner Open Golf Tournament
May 20, 2012
Kresgeville, PA

Hideaway Hills Golf Club,  perched atop 300 acres of rolling hills in the beautiful Pocono Mountains, offers golfers scenic beauty and panoramic views unlike that of any other course you will ever play.   The fun will begin at 1pm.  For $125 a person, or $400 for a foursome, you can golf at a beautiful course, get a great meal, and be eligible to win several wonderful prizes, including a car for a hole in one.

You can REGISTER ONLINE. All questions should be directed to:  thestoneropen@gmail.com

Big Sur 9 Miler
Carmel, CA
April 29, 2012

Sylvia Firary is running for HHT in the Big Sur 9 Miler in Carmel, California on April 29, 2012 to raise awareness and money for HHT, a blood vessel disorder that has affected most of her immediate family. Sylvia has HHT, as do her two brothers and her two children. Sylvia's mother, who died of an unrelated disorder in November of 2009, suffered with HHT for many years with frequent blood transfusions, iron infusions, hospitalizations, etc.

Sylvia has raised $410 toward her goal of $500. Click Here to support her as she raises money and awareness for the HHT Foundation. Let's push her over the top before her race.

100 Miles for HHT
February - December 2012

Helen Anderson doesn't have HHT but she knows people affected by the disorder and has seen firsthand how living with HHT can impact everyday life. Helen is a novice runner and wannabe triathlete.  She ran her first 5K in September 2010 and the Marine Corps Marathon a year later.  Her 2012 New Year’s resolution is to have a big goal.  Therefore, she has decided to run not only for herself, but to raise money for the HHT Foundation.  Helen's goal is to race 100 miles over the course of the year to raise $5000 for the HHT Foundation. To date, she has received $735 in donations.

You can help Helen reach her goal of raising $5,000 for the HHT Foundation, by  ONLINE DONATION or MAIL a check (with "100 Mile Run for HHT" on the memo line) made payable to: HHT Foundation International, Inc., P.O. Box 329, Monkton MD 21111

Helen plans to participate in the following races:

Sweethearts 4ever 4 Mile - February 12, 2012 (4 miles) - DONE
Tune Up Tri - March 25, 2012 (1.4 miles) - DONE
J. Brian's Tap Room 15k - March 31, 2012 (9.3 miles) - DONE
Unite Half Marathon - April 22, 2012 (13.1 miles) - DONE
Festival of the Feet 10k - April 28, 2012 (6.2 miles)
Kinetic Sprint - May 13, 2012 (3.1 miles)
Run Amuck - June 16, 2012 (3.5 miles)
Heritage Festival 5 Mile - July 4, 2012 (5 miles)
Colonial Beach Triathlon Olympic - July 15, 2012 (6.2 miles)
Berkeley Heights 5k - September 16, 2012 (3.1 miles)
Marine Corps Marathon - October 28, 2012 (26.2 miles)
Turkey Trot 5k - November 29, 2012 (3.1 miles)
Gray Half Marathon - December 9, 2012 (13.1 miles)

Olitsky Climb
February 2, 2012

On February 2nd, Allan and Scott Olitsky started their 8 day journey up the 19,340 ft. of Mt. Kilimanjaro to once again raise awareness for HHT, the disease that has affected five generations of their family. To read more about this event  or make a donation, Click Here.

Scott and Allan were successful on many levels. To reach the summit was a personal victory, but they also raised $11,650 for the HHT Foundation  as our banner flew at the top of the mountain. The awareness raised for HHT spanned from the African continent to a local TV station in Philadelphia, PA.  Click Here to watch the video (you have to watch the 15 second commercial before you can see the news clip) and read the published story. Their story was also published in the latest Direct Connection.

Gulf Coast KITE FEST for HHT
Navarre Beach, FL
January 28, 2012

This was the new Gulf Coast RNA’s first event  and what a great day at the beach! Dozens of kites flown, amazing beach combing, lots of family fun, and a perfectly breezy day for it! Even a photographer from the local paper covered the event. Everyone enjoyed the sand dunes, pinwheels, kites, beach combing, and balloons. The event was advertised in the local papers and even picked up by the local radio station.

Approximately 200 people came to enjoy the warm Florida sun and watch the kites, as well as to find out,“What does ‘HHT’ stand for?”  Although the event was totally free, we were able to raise $426 for the HHT Foundation through generous donations made before and during the event.

Kites were flown for over 3 hours in memoriam of: Charles Harding, Edith A. Gillis Marion M. Michel, Sarah (Nathan) Hale, and Hailey Geller. For those that missed the event and would like to make a donation please go to http://hht.org/donate/general/ and please make a note in the comment section at the bottom to mention the Gulf Coast Kite Fest.

I thank you for helping make this Kite Fest such success and inspiration.

Bonnie Gillis, Coordinator, Gulf Coast RNA for HHT

Click Here to print the Kite Fest Flyer

Click Here to visit the Gulf Coast RNA Facebook Page

 UPCOMING EVENTS

Click here to view all the exciting details on the Our Hope Holds The Cure website.

May 18, 2012:     Bowling Fundraiser

June 1, 2012:      3rd Annual Golf Outing

July 28, 2012:    2nd Annual Ride for HHT

GET INVOLVED in the HHT Foundation by contacting Sharon Williams or Cathleen Kinnear or call the foundation office at 800-448-6389 .  You can also visit the Fundraising Page to learn more.

Fundraising Acknowledgements

Here are some ideas of what people in the HHT Community have been doing to help raise funds and awareness for HHT.

The HHT Foundation would like to thank the following individuals for hosting successful grassroots fundraisers in their communities.

• Bowden Triathlon: Raised $1,006.00 this fiscal year at $1,307.48 in total for this event.
• Jake & Cole Timothy: Raised $100 at their family yard sale.
• Laurie Krause – Ran the Wisconsin Ironman Triathlon: Raised $1,244.19 for the HHT Foundation.
• “Doc” Hanks – Hosted a Poker Run: Raised $3,231.09 for the HHT Foundation.
• Mike Lynch & Friends: Participated in the Lake Tahoe Relay Swim – Raised $1,919.43.
• Elliott & Carol Engberg: Sold stained glass items at a local art fair – Raised $1,304.
• Cabi Clothing Party: Debbie Drysdale hosted a clothing party and – Raised $225.50.
• Andy Nelson's Night: The office staff organized a night at this restaurant to have a portion of the evenings check proceeds to benefit HHT  – Raised $229.40.
• Pizza Party of Santa Clara Night: This pizza party night was a success!   – Raised $62.
• The Marathon Challenge: The Baltimore Marathon raised $2,642.65 and the Long Beach Marathon (organized by Debbie Drysdale) raised an additional $6,294.46.  – For a total of $8,937.11.
• Sparkle for a Cause: Debbie Drysdale organized a Silpada Jewelry event to benefit HHT .  – Raised a total of $187.55.
• Southern Living Fundraiser: Cathleen Kinnear hosted a successful Southern Living Party to benefit HHT. – Raised a total of $419.00.
• Fighting for a Cure: Jodie Nissan, with the help of a close friend, organized a Dinner Band Event in her local community.  – Raised a total of $4,000.
• 8th Annual Bass Open: Lisa Bass and family raised an incredible amount at their April Golf event.  A total of $6,358.29 raised.
• "The Stoner Open" Golf Tournament: David and Steven Stoner organized an amazing event for their first time organizing a golf fundraiser.  A total of $11,922.92 was raised.
• Garage Sale - Cathy Ryder and her nieces held a garage sale to create awareness for HHT during National HHT Awareness month in memory of her twins. The sale was successful in raising $130.50, and alot of awareness, for HHT.
• Our Hope Holds the Cure: Organized by the Nissan family, was a series of fundraising events that took place throughout the spring and summer, leading to the Nissan Walk-a-thon which was held on August 7, 2010 in Caton Michigan (suburb of Detroit MI).  The 20 fundraising teams over achieved their goal of $50,000.  
•  "Chair-ity Day" Benefits the HHT Foundation - Teri Colmar organized a golf event with the women of Sunset Ridge Country Club in Northbrook, IL. Each hole had signs that educated the players about HHT. A total of $2,315.00 was raised.