Comments for HHT Foundation International

Comment on Legislative Advocacy by daily kaddish: for Six Feet Under's Nate Fisher

daily kaddish: for Six Feet Under's Nate Fisher — Tue, 20 Sep 2011 07:19:33 +0000

[...] Unless you’ve watched the last season of Six Feet Under and watched Nate Fisher die of complications from arteriovenous malformations (AVMs), you’ve probably never heard of AVMs or the underlying cause, Hereditary Hemorrhagic Telangiectasia (HHT)—which is weird, because it affects 1 in 5000 people, and it can be a pretty horrible condition to live with. A good friend of mine from college has HHT, and she called me the other day asking me to write to a classmate of ours who is now a U.S. Representative to co-sponsor legislation that would fund early diagnosis and treatment. [...]

Comment on Legislative Advocacy by HopeFest 2011 & How You Can Help » Our Hope Holds the Cure

HopeFest 2011 & How You Can Help » Our Hope Holds the Cure — Fri, 29 Jul 2011 12:06:24 +0000

[...] also been assisting the foundation with their effort to get HHT Legislation supported in Congress. Susan Nichols has been very active in securing support from Michigan [...]

Comment on About HHT by hereditary nose bleeds « The Eustachian Project

hereditary nose bleeds « The Eustachian Project — Wed, 21 Jan 2009 21:48:31 +0000

[...] NOT hereditary, but there are a few exceptions to this general rule. One is a condition known as hereditary hemorrhangic telangectasia, or Osler-Weber-Rendu disorder, in which the affected individual has multiple abnormal vascular [...]