Hereditary Hemorrhagic Telangiectasia – Osler-Weber-Rendu

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HHT Research In the News(Comments Off)

April 26, 2012

HHT research publications are on the rise. Dr. Carmelo Bernabeu, Chair of the HHT Foundation Global Research and Medical Advisory Board, documented this phenomenon in the 2012 Vol. 1  Direct Connection newsletter. Read Dr. Bernabeu’s article; Preview the full list of HHT related publications since 2004. Clinicians and Scientists from around the world are publishing [...]

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HHT Awareness Video

The HHT Foundation is proud to announce our first HHT Awareness initiative …. the video production More Than A Nosebleed: HHT. We all have our own HHT story and path to diagnosis but Bernstein-Rein, an advertising agency, through patient stories and the medical expertise of three HHT Center of Excellence Directors, has created the most [...]

NEW HHT Research Published in NATURE

We are excited to announce that the results of HHT Foundation funded research conducted by Dr. Rosemary Akhurst (UCSF) et al. was not only published in the online journal of Nature, nature communication, on January 10, 2012 but it is the featured image of this publication. As stated in the article, “Hereditary Hemorrhagic Telangiectasia (HHT) shows considerable [...]

HHT Research Studies Expanding

The NIH-funded BRAIN AVM Study has expanded to include remote protocols for qualified patients who are not affiliated with a participating HHT Center. The NOSE STUDY is now recruiting qualified patients at 4 HHT Centers. We need you to help advance HHT research – see what is involved and how you can participate!


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