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Important News About Avastin in Treatment of Nosebleeds(Comments Off)
Important News About Avastin in Treatment of Nosebleeds
Dr. James Gossage
HHT Foundation, Medical Director
There is a lot of “buzz” about Avastin in the HHT community during the past year or two. Avastin is the trade name for bevacizumab. Bevacizumab is an antibody that can attach to a protein called vascular endothelial growth factor (VEGF). VEGF is [...]
Annual Donation Appeal
Your donations help enable the foundation to continue our important work. We need your help if we are to sustain a strong financial foundation, look optimistically at the future of expanded research, and adopt more ambitious goals on behalf of each person affected with HHT.
If you have questions please call 1-800-448-6389 (1-410-357-9932 outside the US) [...]
HHT AND PREGNANCY RESEARCH
We would like to announce a new research study for individuals with Hereditary Hemorrhagic Telangiectasia (HHT) available through Mayo Clinic. The purpose of this study is to learn more about the outcomes of pregnancies conceived by men and women that have HHT. We are trying to learn whether there are any pregnancy risks that are [...]
Epistaxis (Nosebleed) Severity Scoring Tool
This online tool will prompt you to complete several questions concerning your nosebleed experience. The purpose of these questions is to calculate the severity score of epistaxis for patients with HHT. Treatment for epistaxis should be determined by a care provider with experience in treating patients with HHT and this calculation should serve as an [...]
More in this category
- Contact your Congressperson about House Resolution # 536
- National HHT Awareness Month
- HHT President Charles Abbot is interviewed on KCPW
- HHT in the News: KTVX ABC Channel 4 in Salt Lake City, Utah




