Living with HHT 
Give Your Mother a Special Gift!(0)
Honor your mother this weekend with a tribute gift in her name to the HHT Foundation. Regardless of a child’s age, a mother provides wisdom and guidance; advice on social, medical, and relationship issues; attends doctor’s visits, recitals, sporting events, and honorariums, but most of all, a mother provides unconditional love. Mother and Child Anonymous Author A mother’s [...]
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HHT Research In the News
HHT research publications are on the rise. Dr. Carmelo Bernabeu, Chair of the HHT Foundation Global Research and Medical Advisory Board, documented this phenomenon in the 2012 Vol. 1 Direct Connection newsletter. Read Dr. Bernabeu’s article; Preview the full list of HHT related publications since 2004. Clinicians and Scientists from around the world are publishing [...]
Multi-Center NOSE Study
“Since my involvement with the HHT Foundation, the one area that has always been a top priority for members is better treatments of nosebleeds,” says Marianne Clancy, Executive Director. Now, after 2 years of careful design, the HHT Foundation is about to launch the largest epistaxis clinical study involving the North American Centers of Excellence.
Epistaxis (Nosebleed) Severity Scoring Tool (ESS)
This online tool will prompt you to complete several questions concerning your nosebleed experience. The purpose of these questions is to calculate the severity score of epistaxis for patients with HHT. Treatment for epistaxis should be determined by a care provider with experience in treating patients with HHT and this calculation should serve as an [...]
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