Living with HHT 
Multi-Center NOSE Study(Comments Off)
May 9, 2011
“Since my involvement with the HHT Foundation, the one area that has always been a top priority for members is better treatments of nosebleeds,” says Marianne Clancy, Executive Director. Now, after 2 years of careful design, the HHT Foundation is about to launch the largest epistaxis clinical study involving the North American Centers of Excellence.
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Epistaxis (Nosebleed) Severity Scoring Tool (ESS)
This online tool will prompt you to complete several questions concerning your nosebleed experience. The purpose of these questions is to calculate the severity score of epistaxis for patients with HHT. Treatment for epistaxis should be determined by a care provider with experience in treating patients with HHT and this calculation should serve as an [...]
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