Living with HHT 
Brain AVM Study Recruitment to take place at St. Louis Conference- October 22-24, 2010(Comments Off)
BRAIN AVM STUDY
Recruitment for the Brain AVM Study to occur at the upcoming St. Louis Conference on October 22-24, 2010
Research is the key to unlocking effective treatments,
or even the cure, to any disease.
In November 2009, the National Institutes of Health awarded the Brain Vascular Malformation Consortium funding to study Brain AVM’s in three diseases, [...]
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Epistaxis (Nosebleed) Severity Scoring Tool (ESS)
This online tool will prompt you to complete several questions concerning your nosebleed experience. The purpose of these questions is to calculate the severity score of epistaxis for patients with HHT. Treatment for epistaxis should be determined by a care provider with experience in treating patients with HHT and this calculation should serve as an [...]
Thalidomide Drug to Aid Nosebleed Sufferers
In June of 2006, the HHT Foundation International awarded Professor C. L. Mummery of the Hubrecht Laboratory in The Netherlands grant funding to study the effects of drug thalidomide on vessel stabilization. The research was conducted by Franck Lebrin, who led the study with colleagues from the National Institute for Health and Medical Research in Paris.
The drug thalidomide, most commonly [...]
