Hereditary Hemorrhagic Telangiectasia – Osler-Weber-Rendu

HHT Foundation rss

HHT Awareness Video(0)

January 27, 2012

The HHT Foundation is proud to announce our first HHT Awareness initiative …. the video production More Than A Nosebleed: HHT. We all have our own HHT story and path to diagnosis but Bernstein-Rein, an advertising agency, through patient stories and the medical expertise of three HHT Center of Excellence Directors, has created the most [...]

Full Story»

UCLA NAMED THE 10th US HHT CENTER OF EXCELLENCE

The HHT Foundation is excited to announce that after a lengthy application and approval process, the HHT Foundation has named UNIVERSITY OF CALIFORNIA at LOS ANGELES HHT CENTER (UCLA) the 10th US HHT Center of Excellence. The HHT Board of Directors has made increasing access to HHT professionals a priority.   By increasing the number of HHT Centers [...]

HHT RECEIVES FUNDING FOR BRAIN AVM RESEARCH

OCTOBER 6, 2009 – The National Institutes of Health just announced a second phase of funding for the Rare Diseases Clinical Research Network (RDCRN). This research award will be funded over the next five years. Originally launched in 2003, the RDCRN addresses rare diseases through consortia and supports related to natural history, epidemiology, diagnosis, and [...]

Hometown Fundraising Ideas

Do you want to find a cure for HHT in your lifetime? If you answered YES, then we need your passion and enthusiasm to help us organize a grassroots fundraiser in your area.