HHT Foundation

Now Offers HHT MedicTags

MedicTag is a digital USB personal medical alert and information device that combines your emergency information with today's technology.  A digital memory chip is used to store all your information on the easy to use MedicTag medical history and alert form.

MedicTag can tell them when you can't.

Each MedicTag features the universal medical alert symbol that first responders are trained to look for on the front of the tag.  The back contains the words HHT Foundation International and the words "Osler-Weber-Rendu Syndrome" along with the HHT Foundation's website.  Any emergency service, ambulance, police or rescue squad with a laptop computer can have instant access to all your emergency information.  Note:  Some hospital emergency rooms may not accept personal USB (Flashdrives).  In this case you can print out the MedicTag information form and take it with you.

Convenient and easy to carry on a key ring.

MedicTag is convenient and easy to carry on a key ring, lanyard or belt loop.  Keep it with you at all times.  FEMA and the Red Cross both recommend that your emergency information, including medications and emergency contacts, be part of your disaster preparation kit. In case of an emergency evacuation due to hurricane or flood that information is much more likely to be available if you have it on your key ring.

You don't need to be a computer expert to use it.

Simply plug it into the USB port on your computer to start the program, there is nothing to install, it's all on the MedicTag. Fill in the blanks with as much, or as little information as you need, click on "save" and you are done.  You can even upload digital X-rays, MRI, and CT scans.   It is compatible with most home and office computers and requires only Windows and MS Word to fill out the information form.

For more information see the following:

• MedicTag Overview
• Instructions for Use
• FAQs
• Demo

We are committed to helping our members manage their HHT.  As an added incentive, we are offering the HHT MedicTags to our members at a special discounted price of $34.99.  A portion of your purchase will support the HHT Foundation.

• HHT Member Price $34.99
• Non-Member Price $44.99

ORDER NOW

If you would like to become a member of the HHT Foundation, please click here.  If you have any questions about the HHT MedicTag, please do not hesitate to contact us at 800-448-6389.

The HHT portion of the study will include 13 HHT Centers participating for 5 years. 875 patients will be recruited through HHT Centers and the HHT Foundation Conferences. The study's aims will:
-include demographics, symptomatology, cerebral angioarchitecture, other organ involvement
- Determine risk factors for hemorrhage HHT BAVM.
- HHT Brain AVM's will be compared against sporadic Brain AVM's
- Determine high risk interventional therapy
-Investigate the use of genetic mutations as potential marker for hemorrhage risk (Endoglin, Alk 1)

The full announcement of the award can be found:
http://www.nih.gov/news/health/oct2009/od-05.htm

If you have questions please call 1-800-448-6389 (1-410-357-9932 outside the US) or email us at hhtinfo@hht.org.

If you prefer to send your payment by mail, please fill out this form: 2009 Annual Appeal Form and fax it to: 1-410-357-0655.

All Information submitted on this form is VOLUNTARY and STRICTLY CONFIDENTIAL.

You can pay by Visa, Mastercard, Discover, Amex, or PayPal. All payments are processed by PayPal, but you don't have to be a PayPal member to pay with a credit card.