Hereditary Hemorrhagic Telangiectasia – Osler-Weber-Rendu

Archive for April, 2010

HHT Foundation Now Selling MedicTags & Discount for MedicAlert Membership

Have you ever wished that all of your medical records could be stored in one easy, convenient location?  If you answered yes, the HHT Foundation can help. HHT Foundation Now Offers HHT MedicTags MedicTag is a digital USB personal medical alert and information device that combines your emergency information with today’s technology.  A digital memory [...]

Epistaxis (Nosebleed) Severity Scoring Tool (ESS)

This online tool will prompt you to complete several questions concerning your nosebleed experience. The purpose of these questions is to calculate the severity score of epistaxis for patients with HHT. Treatment for epistaxis should be determined by a care provider with experience in treating patients with HHT and this calculation should serve as an [...]

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Advocacy ATERO Avastin avm Brain Brain AVM charles abbot clinic co-sponsor conference Congress Dallas Donate Education Epitaxis ESS Funding genetic guidelines Health health care Hereditary hemorrhagic telangiectasia hht HHT Awareness HHT Center of Excellence kcpw KTVX los angeles MedicTag National NIH NIH NINDS Nose Bleed nosebleeds Projects Public Awareness Research Scoring Severity Tool United States University of Texas at Austin utah Vascular Disease video

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