Changes to member benefits as of April 1, 2010

Awareness.   Research.  

Information.   Support.   Educate.

 ARISE to the Benefits of Membership!

The circle of awareness through education, information and research encourages the Foundation and its members to support each other in a common goal to cure HHT.

Members of the HHT Foundation are …

…the kind of people who visit the Foundation website for information...and take the step to JOIN.   

… Pro-active in their family, EDUCATING all whom might have a life threatening condition and make them AWARE of manageable treatment options and the latest RESEARCH. 

… People who receive information and referral SUPPORT from the HHT Foundation and in turn, SUPPORT the HHT Foundation.

… the Physicians who treat HHT and the Scientists who research HHT, such as the Center Directors and the Global Research and Medical Board all maintain memberships.

This is an exciting time to be to be a part of the HHT Foundation!

NOTICE: As of April 2010, the HHT Foundation will re-institute a few member only services.   

In 2010, MEMBERS can look forward to:

• HHT Monthly News Bulletins now sent just to members.
• A 3 part series in Direct Connection member- newsletter titled, “Clinical Guidelines:  What the Clinical Guidelines Mean to You and your Doctor.”  Each issue will focus on different organs affected by HHT.
• A short survey that will ask how you are personally affected by HHT and the Centers of Excellence that you have visited.   We need to know the needs of our members and the personal impact of HHT on each and every one of you.  When asked by research institutions questions such as,   “What percentage of your members have severe epistaxis?” or “How many do you know of in your data base have liver involvement?” The HHT Foundation will have answers representing our constituency.  Research can be impacted by your response!

 Become a member today!