HHT AND PREGNANCY RESEARCH
We would like to announce a new research study for individuals with Hereditary Hemorrhagic Telangiectasia (HHT) available through Mayo Clinic. The purpose of this study is to learn more about the outcomes of pregnancies conceived by men and women that have HHT. We are trying to learn whether there are any pregnancy risks that are higher or different from risks in the general population. Currently, there is very little information on this subject.
Eligibility
• 16 years of age or older with either a clinical or genetic diagnosis of HHT
Requirements
1. Complete a survey which includes questions about your own diagnosis of HHT, any birth defects you may have had, and about each pregnancy for which you were the parent.
2. You will not be paid for participating in this study and may stop participation at any time.
Survey
The survey should take 15-30 minutes and can be completed online by clicking on the link below. If you prefer a paper copy, please contact Karen Wain, M.S. at the phone number below.
Contact Information
Karen Wain, M.S. Genetic Counselor Division of Laboratory Genetics, Cytogenetics Laboratory Department of Medical Genetics, Mayo HHT Clinic Phone: (507) 284-4936 (507) 284-4936 Email: wain.karen@mayo.edu
